It had been awhile since we last updated everyone on "little" Levi, so I thought I would let everyone know how he is doing!
Earlier this week, (9/21/11) Levi had his NICU follow-up appointment. This is a standard appointment for the NICU doctors to make sure any outstanding concerns have been rectified and that developmentally there are no concerns.
When Levi left the NICU, the concerns were elevated bilirubin and TSH (protein) levels, fluid around his kidneys and anemia.
As of September Levi's blood levels have all normalized!!! WOOHOO! Mommy (and Levi) were ready to be done with all the heel pokes!
We will know more about the fluid around Levi's kidneys in November when we meet with the pediatric urologist for a follow-up appointment.
Developmentally, Levi is doing well. He is developmentally between 4-5 months which is to be expected since he was born 6 weeks early. The Occupational Therapist recommended that we just focus on providing him opportunities to work his core muscles!
His big stat is that he now weighs 15 pounds 8 ounces! He is a healthy boy.
Thank you for your prayers for this little man.
Below I am including several photos from the past few months! Levi has become a very HAPPY, TALKATIVE and DETERMINED little boy!
Hi Sarah I came across your blog while google searching. I am almost 12 weeks pregnant and believe I have the same condition as you did. I have been referred to another specialist in 2 days time as my current OBs can't provide me with answers. Everything happening sounds exactly like the symptoms of TRAP syndrome though. I have read your blog and it gives me hope. I just wanted to ask you, how many weeks were you when you found out and how many weeks were you before you had the procedure to stop the flow to the acardiac baby?
ReplyDeleteAt the moment my healthy baby is growing so well and I would like it to stay that way. I know your blog is a few years old now but I guess I'm just looking to find out how for along you were when you found out and also when you had the procedure to help Levi's chances.
My email is shaneandcass@ gmail.com (no spaces) I'd love to hear from you if you have a chance. Thank you and thank you for sharing your blog.
Cassie